Friday, April 24, 2009

There... and back again

It's been a busy week. Paul, Kendra and I made the trek up to Birmingham to meet with a plastic surgeon and with her (Kendra's) urologist to discuss the next steps that need to be taken. Really liked the plastic surgeon, still on the fence about this new urologist. He seems a bit flip about Kendra's concerns. (eye roll) I think he doesn't care to have his "authority" challenged.

Kudos to Kendra for standing her ground and making sure he understood her desires. I have to say this week has been an interesting roller coaster of ups and downs. It's heart warming to realize that Kendra is getting more mature all the time. As she learns to handle more and more about her condition (with doctors), I feel better about letting go.

We didn't get all the answers we wanted and we have another trip up north in May for more tests. In the mean time, I am composing letters to our preferred surgeons (one is in Texas, two are in DC). These three doctors are the ones that have been giving her care through the military since she was a week old. Her local urologist lacks the experience in bladder exstrophy patients that I think we need for certain aspects of the next surgeries.

I am hoping that the e-mails I send out will answer a lot of our questions and either start the ball rolling to get Kendra back to these surgeons, OR help us find "local" surgeons with the experience necessary.

What I really don't want is for Kendra to have to have repetitive corrective surgeries if we choose the wrong surgeons.


Beth said...

Kendra, YOU GO for standing up and making sure these docs answer your concerns!!! No one should ever EVER be shy about speaking up and asking questions of their doctors or anyone else, and a big cheer for Kendra!

friedmsw said...

Working in a hospital, I can relate all too well to the statement about doctors who do not want their authority questioned. THREE CHEERS for Kendra for standing her ground!!

Lynne said...

WTG Kendra! I'm glad she stood her ground! I hope things fall into place with a solution soon. That's half the battle sometimes, getting things into place! Blessings!